Contributors Registry Steering committee



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Contributors

Registry Steering committee: Anne-Catherine Bachoud-Lévi, Anna Rita Bentivoglio, Ida Biunno, Raphael M. Bonelli, Jean-Marc Burgunder, Stephen B. Dunnett, Joaquim J. Ferreira, Olivia J. Handley, Arvid Heiberg, Torsten Illmann, G. Bernhard Landwehrmeyer, Jamie Levey, Maria Ramos-Arroyo, Jørgen E. Nielsen, Susana Pro Koivisto, Markku Päivärinta, Raymund A.C. Roos, Ana Rojo Sebastián, Sarah J. Tabrizi, Wim Vandenberghe, Christine Verellen-Dumoulin, Tereza Uhrova, Jan Wahlström+, Jacek Zaremba

Language coordinators: Verena Baake (formerly Rödig), Katrin Barth, Adrien Come, Leonor Correia Guedes, Ana Maria Finisterra, Monica Bascuñana Garde, Reineke Bos, Sabrina Betz, Jenny Callaghan, Selene Capodarca, Sébastien Charpentier, Wildson Vieira da Silva, Martina Di Renzo, Daniel Ecker, Ruth Fullam, Camille Genoves, Mette Gilling, Olivia J Handley, Carina Hvalstedt, Christine Held, Andrea Horta-Barba, Kerstin Koppers, Claudia Lamanna, Matilde Laurà, Asunción Martínez Descals, Saul Martinez-Horta, Tiago Mestre, Sara Minster, Daniela Monza, Lisanne Mütze, Martin Oehmen, Helene Padieu, Laurent Paterski, Nadia Peppa, Susana Pro Koivisto, Beate Rindal, Dawn Rogers, Niini Røren (formerly Heinonen) Pavla Šašinková, Yuri Seliverstov, Catherine Taylor, Erika Timewell, Jenny Townhill, Patricia Trigo Cubillo, Marleen R van Walsem, Marie-Noelle Witjes-Ané, Grzegorz Witkowski, Abigail Wright, Elizaveta Yudina, Daniel Zielonka, Eugeniusz Zielonka, Paola Zinzi

BELGIUM

Charleroi (Institut de Pathologie et de Génétique (IPG)): Cécile Minet, Pascale Ribaï, Dominique Van Paemel, Christine Verellen-Dumoulin

DENMARK

Copenhagen University Hospital (Rigshospitalet, Memory clinic): Lena Hjermind, Oda Jacobsen, Suzanne Lindquist, Jørgen Nielsen, Lisbeth Regeur, Jette Stockholm, Ida Unmack Larsen, Christina Vangsted-Hansen, Tua Vinther-Jensen



FINLAND


Turku-Suvituuli (Rehabilitation Centre Suvituuli): Pia Eklund, Heli Hiivola, Hannele Hypponen, Kirsti Martikainen, Katri Tuuha

FRANCE

Angers (Centre de référence des maladies neurogénétique- CHU d’Angers): Philippe Allain, Dominique Bonneau Marie Bost, Bénédicte Gohier, Marie-Anne Guérid, Audrey Olivier, Julie Prouzet, Adriana Prundean, Clarisse Scherer-Gagou, Christophe Verny

Bordeaux (Hôpital Pellegrin): Blandine Babiloni, Sabrina Debruxelles, Charlotte Duché, Cyril Goizet, Laetitia Jameau, Danielle Lafoucrière, Umberto Spampinato 

Creteil (Hôpital Henri Mondor): Anne-Catherine Bachoud-Lévi, Farideh Badei, Lotfi Boudali, Catherine Bourdet, Laurent Cléret, Maryline Couette, Cécile Focseneanu, Laurie Lemoine, Graça Morgado, Mehdi Sebaiti, Claire Thiriez, Laetitia Vervoitte, Katia Youssov

Marseille (Hôpital La Timone) : Jean-Philippe Azulay, Christelle Chabot, Marie Delfini, Alexandre Eusebio, Frédérique Fluchere, Christine Garreau, Aicha Ghenam, Hélène Grosjean, Laura Mundler, Marielle Nowak, Roland Raseta

Toulouse (Hôpital Purpan) : Maïté Bertrand, Fabienne Calvas, Samia Cheriet, Laurent Marquine, Michèle Pierre, Jérémie Pariente, Sandrine Rolland, Alice Seris, Valérie Vaquie

GERMANY

Aachen (Universitätsklinikum Aachen, Neurologische Klinik): Christoph Michael Kosinski, Eva Milkereit, Daniela Probst, Kathrin Reetz, Christian Sass, Johannes Schiefer, Christiane Schlangen, Cornelius J. Werner

Bochum (Huntington-Zentrum (NRW) Bochum im St. Josef-Hospital): Gisa Ellrichmann, Lennard Herrmann, Rainer Hoffmann, Barbara Kaminski, Carsten Saft

Hamburg (Universitätsklinikum Hamburg-Eppendorf, Klinik und Poliklinik für Neurologie): Kai Boelmans, Christos Ganos, Ines Goerendt, Walburgis Heinicke, Ute Hidding, Jan Lewerenz, Alexander Münchau, Michael Orth, Jenny Schmalfeld, Lars Stubbe, Simone Zittel

Hannover (Neurologische Klinik mit Klinischer Neurophysiologie, Medizinische Hochschule Hannover): Gabriele Diercks, Dirk Dressler, Flverly Francis, Sabine Gayde-Stephan, Heike Gorzolla, Bianca Kramer, Rebecca Minschke, Christoph Schrader, Pawel Tacik

Münster (Universitätsklinikum Münster, Klinik und Poliklinik für Neurologie): Natalie Bechtel, Heike Beckmann, Stefan Bohlen, Nicole Göpfert, Eva Hölzner, Herwig Lange, Ralf Reilmann, Stefanie Rohm, Silke Rumpf, Christian Sass, Sigrun Schepers, Nathalia Weber

Taufkirchen (Isar-Amper-Klinikum - Klinik Taufkirchen (Vils)): Michael Bachmeier, Matthias Dose, Nina Hofstetter, Ralf Marquard, Alzbeta Mühlbäck

Ulm (Universitätsklinikum Ulm, Neurologie): Katrin Barth, Andrea Buck, Julia Connemann, Daniel Ecker, Carolin Geitner, Christine Held, Andrea Kesse, Bernhard Landwehrmeyer, Franziska Lezius, Jan Lewerenz, Solveig Nepper, Anke Niess, Michael Orth, Ariane Schneider, Daniela Schwenk, Sigurd Süssmuth, Sonja Trautmann, Patrick Weydt

Würzburg (Universitätsklinikum Würzburg, Neurologie): Stephan Klebe, Thomas Musacchio, Christine Leypold, Kerstin Nöth

ITALY

Bari (Neurophysiopathology of Pain Unit, Basic Medical, Neuroscience and Sensory System Department, University of Bari): Claudia Cormio, Marina de Tommaso, Anna Rita Dellomonaco, Olimpia Difruscolo, Giovanni Franco, Vittorio Sciruicchio, Claudia Serpino

Cagliari (Movement Disorders Center, Department of Neurology, Institute of Neurology, University of Cagliari): Michela Figorilli,Francesco Marrosu,Antonella Muroni,Valeria Piras,Melisa Vacca

Florence (Department of Neuroscience, University of Florence & Careggi University Hospital): Caterina Bartoli, Elisabetta Bertini, Fernanda Fortunato, Elena Ghelli, Andrea Ginestroni, Claudia Mechi, Marco Paganini, Silvia Piacentini, Silvia Pradella, Anna Maria Romoli, Sandro Sorbi

Naples (Department of Neurosciences and Reproductive and Odontostomatological Sciences, Federico II University of Naples): Giuseppe De Michele, Luigi Di Maio, Carlo Rinaldi, Marco Massarelli, Silvio Peluso, Alessandro Roca, Cinzia Valeria Russo, Pierpaolo Sorrentino, Elena Salvatore,Tecla Tucci

Pozzilli (IS) (IRCCS Neuromed): Milena Cannella, Valentina Codella, Francesca De Gregorio, Annunziata De Nicola, Francesca Elifani, Tiziana Martino, Francesca Lovo, Irene Mazzante, Martina Petrollini, Maria Simonelli, Ferdinando Squitieri, Maurizio Vezza

Rome (LIRH Foundation): Barbara D'Alessio, Chiara Esposito

Rome (Azienda Ospedaliera Sant'Andrea): Giulia Coarelli, Michela Ferraldeschi, Marina Frontali, Gioia Jacopini, Giovanni Ristori, Silvia Romano, Paola Zinzi

NETHERLANDS

Enschede (Medisch Spectrum Twente): Monique S.E. van Hout, Jeroen P.P. van Vugt, A. Marit de Weert, Marloes Verhoeven

Leiden (Leiden University Medical Centre (LUMC)): Verena Baake, Simon J. A. van den Bogaard, Reineke Bos, Eve M. Dumas, Ellen P. ‘t Hart, Milou Jacobs, Anne Kampstra, Raymund A.C. Roos, Anne Schoonderbeek

NORWAY

Oslo University Hospital (Dept. of Medical Genetics, Dept. of Neurology, Dept.of Neurorehabilitation): Nils Olav Aanonsen, Olaf Aaserud, Liv Barnett, Kathrine Bjørgo, Nancy Borgerød, Elisabeth Dramstad, Madeleine Fannemel, Jan Frich, Helen Gundersen, Per Gørvell, Kathrine Haggag, Arvid Heiberg, Cecilie Haggag Johannessen, Lars Retterstøl, Oddveig Rosby, Jutta Rummel, Alma Sikiric, Olga Solberg, Marleen van Walsem, Ragnhild Wehus

POLAND

Gdansk (St. Adalbert Hospital, Gdansk, Medical University of Gdansk, Neurological and Psychiatric Nursing Dpt.): Artur Dziadkiewicz, Agnieszka Konkel, Ewa Narożańska, Malgorzata Nowak, Piotr Robowski, Emilia Sitek, Jaroslaw Slawek, Witold Soltan, Michal Szinwelski

Katowice (Medical University of Silesia, Katowice): Michał Arkuszewski, Magdalena Błaszczyk, Magdalena Boczarska-Jedynak, Ewelina Ciach-Wysocka, Agnieszka Gorzkowska, Barbara Jasińska-Myga, Aleksandra Kaczmarczyk, Gabriela Kłodowska – Duda, Grzegorz Opala, Monika Rudzińska, Daniel Stompel

Krakow (Krakowska Akademia Neurologii): Krzysztof Banaszkiewicz, Dorota Boćwińska, Kamila Bojakowska-Jaremek, Małgorzata Dec, Natalia Grabska, Malgorzata Krawczyk, Ewelina Kubowicz, Michalina Malec-Litwinowicz, Monika Rudzińska, Agata Stenwak, Andrzej Szczudlik, Elżbieta Szczygieł, Magdalena Wójcik, Anna Wasielewska

Poznan (Poznan University of Medical Sciences, Poland): Jacek Anioła Anna Bryl, Anna Ciesielska, Aneta Klimberg, Jerzy Marcinkowski, Husam Samara, Justyna Sempołowicz, Bartłomiej Wiśniewski, Daniel Zielonka

Warsaw-MU (Medical University of Warsaw, Neurology): Anna Gogol (formerly Kalbarczyk), Piotr Janik, Zygmunt Jamrozik, Anna Kaminska, Hubert Kwiecinski+

Warsaw-IPiN (Institute of Psychiatry and Neurology Dep. of Genetics, First Dep. of Neurology): Jakub Antczak, Katarzyna Jachinska, Wioletta Krysa, Maryla Rakowicz, Przemyslaw Richter, Rafal Rola, Danuta Ryglewicz, Halina Sienkiewicz-Jarosz, Iwona Stępniak, Anna Sułek, Grzegorz Witkowski, Jacek Zaremba, Elzbieta Zdzienicka, Karolina Ziora-Jakutowicz

PORTUGAL

Coimbra – (Hospital Universitário de Coimbra): Cristina Januário, Filipa Júlio

Lisbon-HSM (Hospital de Santa Maria, Clinical Pharmacology Unit, Instituto de Medicina Molecular): Leonor Correia Guedes, Joaquim J Ferreira, Ana Maria Finisterra, Ana Salgueiro, Tiago Mestre, Miguel Coelho, Tiago Mendes, Mário Miguel Rosa, Anabela Valadas

Lisbon-Central (Hospital dos Capuchos, Centro Hositalar Lisboa Central): Cristina Semedo, Ana Calado, Joana Morgado, Margarida Dias, Manuel Almeida.

SPAIN

Badajoz (Hospital Infanta Cristina): Carmen Durán Herrera, Patrocinio Garcia Moreno

Barcelona-Bellvitge (Hospital Universitari de Bellvitge): Jordi Bas, Núria Busquets, Matilde Calopa, Serge Jaumà Classen, Nadia Rodríguez Dedichá

Barcelona-Hospital Mútua de Terrassa : Miquel Aguilar Barbera, Ana Rojo Sebastián, Sonia Arribas Pardo, Dolors Badenes Guia, Noemi Calzado, Laura Casas Hernanz, Juan Pablo Tartari Díaz-Zorita, Judit López Catena, Pilar Quiléz Ferrer, Gemma Tome Carruesco

Barcelona-Merced (Hospital Mare de Deu de La Merced): Misericordia Floriach Robert, Cèlia Mareca Viladrich, Elvira Roca, Jesús Miguel Ruiz Idiago, Antonio Villa Riballo

Barcelona-Santa Cruz y San Pablo (Hospital de la Santa Creu i Sant Pau): Antonia Campolongo, Ramon Fernandez de Bobadilla, Jaime Kulisevsky Bojarsky, Saul Martinez-Horta, Javier Pagonabarraga, Jesus Perez Perez, Carolina Villa

Bilbao (Hospital de Cruces): Maria Angeles Acera Gil, Koldo Berganzo Corrales, Juan Carlos Gomez Esteban, Amaia González, Beatriz Tijero Merino

Burgos (Servicio de Neurología Hospital General Yagüe): Esther Cubo, Natividad Mariscal

Canarias (Hospital Insular de Gran Canaria): Sandra Gutierrez Romero, José Matías Arbelo, Rocío Malo de Molina, Idaira Martín, Juan Manuel Periañez, Beatriz Udaeta

Fuenlabrada (Hospital Universitario): Fernando Alonso-Frech

Madrid-BTCIEN (Fundación CIEN): Belén Frades, Marina Ávila Villanueva, Maria Ascension Zea Sevilla

Madrid-Clinico (Hospital Clínico Universitario San Carlos): Fernando Alonso Frech, María del Mar Fenollar, Rocío García-Ramos García, Clara Villanueva

Madrid RYC (Hospital Ramón y Cajal, Neurología): Mónica Bascuñana, Marta Fatás Ventura, Juan García Caldentey, Guillermo García Ribas, Justo García de Yébenes, José Luis López–Sendón Moreno, Verónica Mañanes Barral, Patricia Trigo Cubillo

Madrid FJD (Madrid-Fundación Jiménez Díaz): Cici Feliz Feliz, Pedro José García Ruíz, Ana García, Juan García Caldentey, Rosa Guerrero López, Antonio Herranz Bárcenas, Asunción Martínez-Descals, Angel Martínez Pueyo, Veronica Puertas Martin, Noelia Rodríguez Martínez, María José Sainz Artiga, Vicenta Sánchez, Javier del Val Fernandez

Murcia (Hospital Universitario Virgen de la Arrixaca): Carmen Antúnez Almagro, Salvadora Manzanares, Juan Marín Muñoz, María Martirio Antequera Torres, Fuensanta Noguera Perea, Laura Vivancos Moreau

Oviedo (Hospital Central de Asturias): Sonia González, Luis Menéndez Guisasola, Carlos Salvador, René Ribacoba, Pablo Sánchez Lozano, Marta Para Prieto

Palma de Mallorca (Hospital Universitario Son Espases): Juan García Caldentey, Aránzazu Gorospe, Inés Legarda Ramirez, Penelope Navas Arques, Monica Rodriguez Lopera, Barbara Vives Pastor

Pamplona (Complejo Hospitalario de Navarra): Itziar Gaston, Maria Antonia Ramos-Arroyo, Maria Dolores Martinez-Jaurrieta

Sevilla (Hospital Virgen Macarena): José Manuel García Moreno, Carolina Mendez Lucena, José Chacón Peña, Fátima Damas Hermoso, Eva Pacheco Cortegana, Luis Redondo

Sevilla-St Ana: Cristina Melgar Fernandez, Maite Paredes Mata, Maria Dolores Romero Lemos

Valencia (Hospital la Fe): Maria Bosca, Juan Andres Burguera, Francisco Castera Brugada Carmen Peiró Vilaplana


Zaragoza (Hospital Clínico): Elena Bellosta Diago, Javier López del Val, Laura Martinez Martinez, Elena López

SWEDEN

Göteborg (Sahlgrenska University Hospital): Peter Berglund, Radu Constantinescu, Gunnel Fredlund, Ulrika Høsterey-Ugander, Liselotte Neleborn-Lingefjärd, Jan Wahlström+,

SWITZERLAND

Bern: Jean-Marc Burgunder, Yanik Stebler (Swiss HD Zentrum), Alain Kaelin, Irene Romero, Michael Schüpbach, Sabine Weber Zaugg (Zentrum für Bewegungsstörungen, Neurologische Klinik und Poliklinik, Universität Bern)

U.K.

Aberdeen (NHS Grampian Clinical Genetics Centre & University of Aberdeen): Lorna Downie, Roisin Jack, Kirsty Matheson, Zosia Miedzybrodzka, Daniela Rae, Sheila A Simpson, Fiona Summers, Alexandra Ure, Vivien Vaughn

Birmingham (The Barberry Centre, Dept of Psychiatry): Shahbana Akhtar, Jenny Crooks, Adrienne Curtis, Jenny de Souza (Keylock), John Piedad, Hugh Rickards, Jan Wright

Bristol (North Bristol NHs Trust, Southmead hospital): Elizabeth Coulthard, Louise Gethin, Beverley Hayward, Kasia Sieradzan, Abigail Wright

Cardiff (Schools of Medicine and Biosciences, Cardiff University): Monica Busse, Cynthia Butcher, Jenny Callaghan, Stephen Dunnett, Catherine Clenaghan, Ruth Fullam, Sarah Hunt, Lesley Jones, Una Jones, Hanan Khalil, Sara Minster,  Michael Owen, Kathleen Price, Jenny Townhill,  Anne Rosser

Fife (Scottish Huntington's Association Whyteman's Brae Hospital): Peter Brockie, Jillian Foster, Nicola Johns, Sue McKenzie, Jean Rothery, Gareth Thomas, Shona Yates

Launceston (Millaton Court): Alyson Andrew, Julie Frost, Rupert Noad

Leeds (Chapel Allerton Hospital, Department of Clinical Genetics: Jeremy Cosgrove, Deena Gallantree, Stephanie Hamer, Emma Hobson, Stuart Jamieson , Alison Kraus, Mandy Longthorpe, Ivana Markova, Hannah Musgrave, Caroline Peacy, Ashok Raman, Liz Rowett, Jean Toscano, Sue Wild, Pam Yardumian

Leicester (Leicestershire Partnership Trust, Mill Lodge): Carole Clayton, Heather Dipple, Dawn Freire- Patino, Caroline Hallam, Julia Middleton

London (St. Georges-Hospital): Uruj Anjum, Jan Coebergh, Charlotte Eddy, Nayana Lahiri, Meriel McEntagart, Michael Patton, Maria Peterson, Sarah Rose

London (The National Hospital for Neurology and Neurosurgery): Thomasin Andrews, Stefanie Brown, Stefania Bruno, Elvina Chu, Karen Doherty, Charlotte Golding, Salman Haider, Davina Hensman, Nayana Lahiri, Monica Lewis, Marianne Novak, Aakta Patel, Joy Read, Nicola Robertson, Elisabeth Rosser, Sarah Tabrizi, Rachel Taylor, Thomas Warner, Edward Wild

Manchester (Genetic Medicine, University of Manchester, Manchester Academic Health Sciences Centre and Central Manchester University Hospitals NHS Foundation Trust): Natalie Arran, Judith Bek, Jenny Callaghan, David Craufurd, Ruth Fullam, Marianne Hare, Liz Howard, Susan Huson, Liz Johnson, Mary Jones, Ashok Krishnamoorthy, Helen Murphy, Emma Oughton, Lucy Partington-Jones, Dawn Rogers, Andrea Sollom, Julie Snowden, Cheryl Stopford, Jennifer Thompson, Iris Trender-Gerhard, Nichola Verstraelen (formerly Ritchie), Leann Westmoreland

Newcastle-upon-Tyne (Centre for Life, Institute of Medical Genetics): Ginette Cass, Lynn Davidson, Jill Davison, Neil Fullerton, Katrina Holmes, Suresh Komati, Sharon McDonnell, Zeid Mohammed, Karen Morgan, Lois Savage, Baldev Singh, Josh Wood

Oxford (Oxford University Hospitals NHS Trust, Dept. of Neurosciences, University of Oxford): Andrea H Nemeth, Gill Siuda, Ruth Valentine, Kathryn Dixon, Richard Armstrong

Plymouth (Plymouth Huntington Disease Service, Mount Gould Hospital): David Harrison, Max Hughes, Sandra Large, John O Donovan, Amy Palmer, Andrew Parkinson, Beverley Soltysiak, Leanne Timings, Josh Williams

Sheffield (The Royal Hallamshire Hospital– Sheffield Children’s Hospital): Oliver Bandmann, Alyson Bradbury, Helen Fairtlough, Kay Fillingham, Isabella Foustanos, Paul Gill, Mbombe Kazoka, Kirsty O’Donovan, Louise Nevitt, Nadia Peppa, Oliver Quarrell, Cat Taylor, Katherine Tidswell, Kirsty O’Donovan

Swindon (Victoria Centre, Great Western Hospital): Lesley Gowers, Kingsley Powell, Pamela Bethwaite, Rachel Edwards, Kathleen Fuller, Michelle Phillips


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