Facultad de letras y ciencias humanas departamento de humanidades


Revistas especializadas en estudios de discapacidad



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Revistas especializadas en estudios de discapacidad


Disability Studies Quarterly – Journal of the Society for Disability Studies (SDS).

http://www.dsq-sds.org/

Journal of Disability Policy Studies – PRO-ED, Inc. Austin, Texas



http://www.proedinc.com/jdps.html

Disability and Society - Editor: Len Barton, Institute of Education, University of London, UK. Taylor & Francis - http://www.tandf.co.uk/journals/titles/09687599.asp


Fuentes de bibliografía digital sobre Estudios de Discapacidad

Universidad de Leeds - the Disability Archive UK - Hosted by the Centre for Disability Studies - University of Leeds.



http://www.leeds.ac.uk/disability-studies/archiveuk/index.html
ILRU - Independent Living Research Utilization - ILRU Publications, Web Links, FAQs, Other Resource Materials - http://www.ilru.org/Publications/index.html
DSQ – SDS - Disability Studies Quarterly – Journal of the Society for Disability Studies (SDS). http://www.dsq-sds.org/
Independent Living Institute – Library -

http://www.independentliving.org/library.html

Independent Living Institute – Annotated List of Documents in the Library by Author



http://www.independentliving.org/libauth.html
Bibliografía sobre Discapacidad y enfoque de capacidades

  1. KUKLYS, Wiebke (2004) “A Monetary Approach to Capability Measurement of the Disabled. Evidence from the UK”. University of Cambridge. February 7, 2004. https://papers.mpiew-jena.mpg.de/esi/discussionpapers/2004-08.pdf

  2. MITRA, Sophie (2004) “The Capability Approach and Disability”. Program for Disability Research. A unit of the Disability Research Institute of the University of Illinois at Urbana-Champaign and a constituent unit of the School of Management and Labor Relations at Rutgers, The State University of New Jersey. April 2004. www.disabilityresearch.rutgers.edu/Sophie/MitraCapabilityApproachDisabilityPaper.pdf

  3. MITRA, Sophie (2003) “The Capability Approach and Disability”. Paper prepared for the 3rd Conference on the Capability Approach: From Sustainable Development to Sustainable Freedom - Pavia, Italy, 7-9 September 2003. August 2003. http://www.unipv.it/deontica/sen/papers/Mitra.pdf

  4. SEN, Amartya (2004) “Disability and Justice”, Speech held at 2004 World Bank International Disability Conference, “Disability and Inclusive Development: Sharing, Learning and Building Alliances”, Dec. 2004. Internet publication URL: http://siteresources.worldbank.org/DISABILITY/214576-1092421729901/20291152/Amartya_Sen_Speech.doc

  5. TERZY, Lorella (2003) "A Capability Perspective on Impairment, Disability and Special Needs: Towards Social Justice in Education". Institute of Education, University of London. Paper prepared for the 3rd Conference on the Capability Approach: From Sustainable Development to Sustainable Freedom - Pavia, Italy, 7-9 September 2003. http://www.unipv.it/deontica/sen/papers/Terzi.pdf

  6. ZAIDI, Asghar and BURCHARDT, Tania (2004) 'Comparing incomes when needs differ: Equivalisation for the extra costs of disability in the UK', Review of Income and Wealth, CASEpaper 64, Centre for Analysis of Social Exclusion. February 2003, London School of Economics.

http://sticerd.lse.ac.uk/dps/case/cp/CASEpaper64.pdf

1 Esta cita corresponde Prólogo que Albert Dondeyne hizo al libro de William A. Luypen, titulado "Fenomenología Existencial". Ver LUYPEN, W. (1959) “Fenomenología Existencial”. Buenos Aires (Argentina), Carlos Lohlé. 1967. Traducción del holandés “Existentiële fenomenologie”. 1959, por Pedro Martín y de la Camara

2 Esta traducción suena bastante mal hoy en día pues, a juzgar por su texto original en inglés, Declaration on the Rights of Disabled Persons, la traducción correcta debía haber sido “Declaración de los Derechos de las Personas con Discapacidad”. Como se puede observar la versión inglesa pone un claro énfasis en la condición de persona, del sujeto, antes que en su discapacidad. La traducción castellana, por el contrario, con bastante torpeza, magnifica al adjetivo “impedido”, dándole un carácter sustantivo que hace desaparecer por completo toda referencia a la persona.

3 “Prevalencia de las Deficiencias, Discapacidades y Minusvalías en el Perú. 1993”. Este estudio fue realizado por el Instituto Nacional de Rehabilitación con el patrocinio de la Organización Panamericana de la Salud, y del Instituto Nacional de Estadística e Informática – INEI.

4 Ver a este respecto: DPI’s Commitment to an International Convention on the Rights of Disabled Persons. April 2001/UK. http://www.dpi-japan.org/2actions/2-6/statement/010409e.htm

5 Fragmentos traducidos de: “WHO Conference on Health and Disability” by Dr Gro Harlem Brundtland. Director-General of World Health Organization. Trieste, 18 April 2002. Internet publication: http://www.who.int/director-general/speeches/2002/english/20020418_disabilitytrieste.html


6 Ver: http://usuarios.discapnet.es/lavoz/LaVoz2/problema.htm

7 En abril del año 1999 asumimos la Vicepresidencia de la Confederación de Discapacitados del Perú – CONFENADIP. Las lecturas del año precedente tenían que ver con el tema de discapacidad y correspondían a textos normativos elaborados y aprobados por las Naciones Unidas o la Organización Mundial de la Salud. Eran textos como el “Programa de Acción Mundial para impedidos” (1982), las “Normas Uniformes para la equiparación de oportunidades de personas con discapacidad” (1993) o el nuevo Clasificador de discapacidades, más conocido como CIDDM-2 que se encontraba en ese entonces en pleno proceso de elaboración. Tanto el proceso electoral como las responsabilidades asumidas al frente de la CONFENADIP determinaron el sesgo “político” de estas reflexiones filosóficas.

8 Resolución Jefatural Nº 177-2001-J/ONPE

9 Ver p. 42 de HUNT, Paul (1981). “Settling Accounts With The Parasite People: A Critique of “A Live apart” By E.J. Miller and G.V. Gwynne”, in: Disability Challenge 1 (London: UPIAS), pp. 37-50.

10 “Faced with any socially oppressed group, social scientists have a choice of only two alternatives; either a firm commitment to serve the interests of the oppressed group to end their oppression, or a commitment to serve the interests of the oppressors to continue their oppressive practices (which last they also do by serving their own interests). There can be no middle way”. Op. Cit. Pág. 42

11 Véase TAYLOR, Charles, “El multiculturalismo y la política del reconocimiento” / comentarios de Amy Gutmann... [et al.]. México, D. F., Fondo de Cultura Económica, 1993. Pág. 43 y ss.

12 Op. Cit. Pp 43 y 44.

13 Véase: ABBERLEY, Paul (1987) “The Concept of Oppression and the Development of a Social Theory of Disability”, in “Disability, Handicap and Society”, 2, 1, pp. 5– 21. Reprinted as CHAPTER 10 (In ‘Disability Studies: Past Present and Future’ edited by Len Barton and Mike Oliver (1997); Leeds: The Disability Press, pp. 160 – 178).

14 CIF es la sigla de la “Clasificación Internacional del Funcionamiento, de la Discapacidad y de la Salud” que es el nombre del último sistema de clasificación de discapacidades de la OMS.

15 Ver al respecto: “Disability and Society” Volume 15, Number 7 / December 1, 2000. Taylor & Francis Group, en especial los artículos de Mike Bury, David Pfeiffer y Rachel Hurst. Un comentario de ellos aparece en: OLIVER, M . (2002) “Emancipatory Research: A Vehicle for social Transformation or Policy Development”. Paper presented at the First Annual Disability Research Seminar hosted by The national disability authority and The Centre for Disability Studies, University College, Dublin, 3 December, 2002.


16 Véase al respecto: ABBERLEY, Paul (1987) “The Concept of Oppression and the Development of a Social Theory of Disability”, in “Disability, Handicap and Society”, 2, 1, pp. 5– 21. Reprinted as CHAPTER 10 (In ‘Disability Studies: Past Present and Future’ edited by Len Barton and Mike Oliver (1997); Leeds: The Disability Press, pp. 160 – 178).

17 Un término menos forzado para traducir “disablement” es la palabra “menoscabo”. Demetrio Casado se inclina por ello en: CASADO, Demetrio (1998) “En busca de un sistema conceptual para la discapacidad”. En: "Discapacidad y Comunicación Social", editado por el Real Patronato de Prevención y de Atención a Personas con Minusvalía en su serie Documentos 14/98, páginas 29 a 39 (Madrid, 1999).

18 We have to recognise that disablement is not merely the physical state of a small minority of people. It is the normal condition of humanity. SUTHERLAND, Allan T. (1981) Disabled We Stand (London, Souvenir Press).

19 Why, if disablement is the `normal condition of humanity' are only some members of the human race accorded the label `disabled'?. Véase Paul ABBERLEY, op.cit.

20 CASADO, Demetrio (1998) “En busca de un sistema conceptual para la discapacidad”. En: "Discapacidad y Comunicación Social", editado por el Real Patronato de Prevención y de Atención a Personas con Minusvalía en su serie Documentos 14/98, páginas 29 a 39 (Madrid, 1999).

21 DEL AGUILA, Luis Miguel (2004) “Inclusión de las Personas con Discapacidad: Condición para el desarrollo”. Draft. Febrero 2004. Discurso preparado para el Ciclo de conferencias "Debates actuales sobre discapacidad" organizado por el Centro de Investigaciones y Servicios Educativos de la Pontificia Universidad Católica del Perú (CISE-PUC) y el Centro de Empoderamiento de Personas con Discapacidad (CEMPDIS) en Febrero del 2004.

22 La referencia a la propia discapacidad y al ámbito de intereses en que se enmarca el desarrollo de cualquier tema sobre discapacidad, es un recurso importante al que suelen echar mano los teóricos de la discapacidad. La encontramos en Paul Hunt (A critical condition), en Paul Abberley (The Concept of Oppression and the Development of a Social Theory of Disability) como en Colin Barnes (Disability Studies: what’s the point?)

23 HAHN, Harlan (1985) "Toward a Politics of Disability: Definitions, Disciplines, and Policies." Social Science Journal 22:4. Pp. 87-105.

24 “The study of disability is experiencing significant changes which have affected all of the social sciences, but relatively little attention has been devoted to this subject by political scientists. Many of these changes can be traced to a definitional shift from a medical orientation, which focuses on functional impairments, and an economic approach, which stresses vocational limitations, to a socio-political perspective which regards disability as the product of the interaction between the individual and the environment. The latter view has led to a new emphasis on anti-discrimination measures and to a "minority-group" model of disability, which recognizes that the environment is molded by public policy and that policy is a reflection of prevalent social attitudes and values”. Op.cit.

25 “Among the issues that form the current agenda of political debate, perhaps few offer as much promise for achieving significant political change as the development of public policy affecting disabled Americans. Emerging from a legacy which commonly regarded disability either as a depressing topic to be avoided whenever possible or as a minor component of other policy issues, public leaders now have the opportunity to acquire a new understanding of this subject which embodies viable prospect of resolving crucial problems that confront disabled citizens. Most existing policies appear to be based on erroneous assumptions about the nature and meaning of disability. A reevaluation of the question, therefore, offers a rare chance not only to correct prior mistakes but also to establish the foundation of a society adapted to the concerns of disabled as well as nondisabled persons. A major basis of the hope for changes in public policy can be traced in an important shift to prevalent definitions of disability”. HAHN, Harlan (1987) "Civil Rights for Disabled Americans: The Foundation for a Political Agenda." In Alan Gartner and Tom Joe (eds.), Images of the Disabled, Disabling Images. New York: Praeger.

26 European Commission (2002) “Definitions of disability in Europe: A comparative analysis”, Final report. A study prepared by Brunel University. 13 September 2002

27 This comprehensive study which analyses and assesses the policy implications of alternative definitions of disability on policies for people with disabilities is highly relevant for all those interested in the future of collective action in favour of people with disability. It clearly shows that the definition of what constitutes disability affects in particular the way that people with disabilities are regarded and treated by administrations and other organisations.

28 WOOD, Philip (1981) 'International Classification of Impairments, Disabilities and Handicaps', World Health Organization (WHO), Geneva.

29 OMS – Organización Mundial de la Salud (1983), “Clasificación Internacional de Deficiencias, Discapacidades y Minusvalías. Manual de clasificación de las consecuencias de la enfermedad”. 282 pp. Madrid. Ministerio de Asuntos Sociales; Instituto Nacional de Servicios Sociales, INSERSO. 1983.

30 ONU (1988) “Programa de acción mundial para las personas con discapacidad”. Madrid: Real Patronato de Prevención y de Atención a Personas con Minusvalía, 1988. Traducción del inglés: World Programme of Action concerning Disabled Persons, aprobado por Resolución A/RES/37/52 del 3 de Diciembre de 1982.

31 CHARLTON, James I. (1998) “Nothing About Us Without Us. Disability, Oppression and Empowerment”. Berkeley: University of California Press.

32 En lo que sigue tomaremos como referencia lo mencionado en las siguientes publicaciones: MORRIS, Jenny (1991) “Pride Against Prejudice: Transforming Attitudes to Disability”. The Women's Press Ltd, London, 1991; y MEIJER, Miriam (2000) Desegregating the disabled. Internet publication. http://www.worldtravelcenter.com/jetstream/newsweather/newsletter/Dec00/article2.html.

33 Ver al respecto: http://www.dpi.org

34 Tal como ha hecho ver Steve Brown en su libro “Freedom of Movement: Independent Living History and Philosophy”. Houston Texas, ILRU Publications, 2000, antes de la experiencia de Ed Roberts en la Universidad de Berkeley, hubieron otras experiencias como la de los veteranos de la segunda guerra mundial que lograron que la Universidad de Illinois pusiera un programa de rehabilitación para estudiantes con discapacidad en los años 1946-7, así como la del propio Presidente Franklin Roosevelt.

35 Al conjunto de estos principios, enfoques y máximas se les llamó “filosofía de vida independiente”:

36 Lo que se comenta a continuación está referido a las siguientes publicaciones del autor: HUNT, Paul. (ed.) “Stigma: The Experience of Disability”, London (UK), Geoffrey Chapman, 1966; HUNT, Paul “A Critical Condition” in HUNT, Paul (ed.) (1966) “Stigma: The Experience of Disability”, London, Geoffrey Chapman, pp. 145-164.; HUNT, Paul (1981). “Settling Accounts With The Parasite People: A Critique of “A Live apart” By E.J. Miller and G.V. Gwynne”, in: Disability Challenge 1 (London: UPIAS), pp. 37-50.

37 UPIAS, (1981). Disability Challenge, Vol. I (London: UPIAS).

38 Popular periódico londinense, de tendencia izquierdista.

39 Vic Finkelstein es un psicólogo con discapacidad – tenía secuelas de polio – que llegó a Inglaterra a fines de los 60, huyendo de la persecución política del gobierno de Sudáfrica contra todos aquellos activistas que se oponían al Apartheid. Finkelstein, de formación marxista, asimiló la segregación de las personas de raza negra con la segregación de las personas con discapacidad en instituciones especiales, en la medida que así se les negaban sus derechos a integrarse en la vida ordinaria de sus comunidades.

40 FINKELSTEIN, V. (2001) “A Personal Journey Into Disability Politics”. First presented at Leeds University Centre For Disability Studies, February 2001.

41 La “Unión de los impedidos físicos contra la segregación”, fue la primera organización de personas con discapacidad, fundada en 1972, que planteó el origen social de la discapacidad.

42 “… after all we spent something like two years discussing a wide range of issues which seemed fundamental to our oppression and this was eventually expressed in the organisation's title”. FINKELSTEIN, V. (2001) “A Personal Journey Into Disability Politics”. First presented at Leeds University Centre For Disability Studies, February 2001.

43 UPIAS (1976). “Fundamental Principles of Disability”, (London: Union of the Physically Impaired Against Segregation - UPIAS).

44 “In our view, it is society which disables physically impaired people. Disability is something imposed on top of our impairments by the way we are unnecessarily isolated and excluded from full participation in society. Disabled people are therefore an oppressed group in society". To understand this it is necessary to grasp the distinction between the physical impairment and the social situation, called 'disability', of people with such impairment. Thus we define impairment as lacking part of or all of a limb, or having a defective limb, organ or mechanism of the body; and disability as the disadvantage or restriction of activity caused by a contemporary social organisation which takes no or little account of people who have physical impairments and thus excludes them from participation in the mainstream of social activities. Physical disability is therefore a particular form of social oppression”. UPIAS (1976) op. cit. p. 3-4

45 “It follows from this analysis that having low incomes, for example, is only one aspect of our oppression. It is a consequence of our isolation and segregation, in every area of life, such as education, work, mobility, housing, etc. Poverty is one symptom of our oppression, but it is not the cause”. Op.cit.

46 Ver al respecto, SHAKESPEARE, Tom & WATSON, Nicholas (2002) “The Social Model of Disability: An outdated ideology?”, in: Journal ‘Research in Social Science and Disability’ Volume 2, pp. 9-28.

47 Más información sobre la IDA se puede encontrar en: http://www.internationaldisabilityalliance.org/

48 Sobre el Caucus Internacional de discapacidad se puede obtener información en: http://www.disabilityworld.org/12-02_05/news/adhocreport.shtml , http://www.un.org/esa/socdev/enable/rights/idc05.htm, http://www.dcdd.nl/data/1095253292350_IDC%20contribution%204th%20AHC.pdf

49 In its broadest implications, the independent living movement is the civil rights movement of millions of Americans with disabilities. It is the wave of protest against segregation and discrimination and an affirmation of the right and ability of persons with disabilities to share fully in the responsibilities and joys of our society.

50 GOFFMAN, Erving (1963) “Estigma: la identidad deteriorada”, Buenos Aires, Amorrortu, 1970. Traducción del inglés: “Stigma: Notes on the Management of Spoiled Identity”, Harmondsworth, Penguin. 1963.

51 HUNT, Paul “A Critical Condition” in HUNT, Paul (ed.) (1966) “Stigma: The Experience of Disability”, London, Geoffrey Chapman, pp. 145-164.

52 GOFFMAN, Erving (1963) “Estigma: la identidad deteriorada”, Buenos Aires, Amorrortu, 1970. Traducción del inglés: “Stigma: Notes on the Management of Spoiled Identity”, Harmondsworth, Penguin.

53 HUNT, Paul “A Critical Condition” in HUNT, Paul (ed.) (1966) “Stigma: The Experience of Disability”, London, Geoffrey Chapman, pp. 145-164.

54 http://www.bcodp.org.uk/

55 http://www.dpi.org/

56 HUNT, Paul “A Critical Condition” in HUNT, Paul (ed.) (1966) “Stigma: The Experience of Disability”, London, Geoffrey Chapman, pp. 145-164.

57 Las líneas que siguen se basan en el libro: “Achieving Independence: The Challenge for the 21st Century”, National Council on Disability, 1996; y en el artículo “History of Independent Living” escrito por Gina McDonald and Mike Oxford. Internet publication: http://www.acils.com/acil/ilhistory.html

58 For generations, society has viewed people with disabilities as citizens in need of charity. Through ignorance we tolerated discrimination and succumbed to fear and prejudice. But our paternalistic approach did no more to improve the lives of people with disabilities than labor laws restricting women in the workplace did to protect women. Today we are shedding these condescending and suffocating attitudes--and widening the door of opportunity for people with disabilities….People with disabilities are here today to remind us that equal justice under the law is not a privilege but a fundamental birthright in America.

59 Mayor información al respecto se puede encontrar en el ensayo de DE JONG, G. (1979) “Independent living: from social movement to analytic paradigm”. Arch Phys Med Rehabil 60: 435-446, 1979.

60 Ver WOLFENSBERGER, Wolf (1969) “The Origin and Nature of Our Institutional Models”. In: Changing Patterns in Residential Services for the Mentally Retarded. President’s Committee on Mental Retardation, Washington, D.C.

61 ILLICH, Ivan (1976) “Medical Nemesis: The Expropriation of Health” (New York: Pantheon Books, 1976). En castellano: Némesis Médica 1978, Editorial Joaquín Mortiz, S.A. México D.F. Versión directa al español de Juan Tovar, revisada y corregida por Valentina Borremans y Verónica Petrowitsch. Ver también: Illich, I., I.K. Zola, J. McKnight, J. Kaplan, and H. Shaiken (1977) “Disabling Professions”. London: Marion Boyars.

62 DE JONG, G. (1979) “Independent living: from social movement to analytic paradigm”. Arch Phys Med Rehabil 60: 435-446, 1979


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