Facultad de letras y ciencias humanas departamento de humanidades



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63 HAHN, Harlan (1985) "Toward a Politics of Disability: Definitions, Disciplines, and Policies." Social Science Journal 22:4. Pp. 87-105. Internet publication URL: http://www.independentliving.org/docs4/hahn2.html

64 Estas siglas responden al nombre en inglés: National Council on Independent Living. Más información al respecto se puede encontrar en la siguiente web: http://www.ncil.org/

65 DE JONG, G. (1979) “Independent living: from social movement to analytic paradigm”. Arch Phys Med Rehabil 60: 435-446, 1979.

66 Ver: PFEIFFER, David (2002) "The Philosophical Foundations of Disability Studies", in: Disability Studies Quarterly, Spring 2002, Volume 22, No. 2, pages 3-23. En especial: PFEIFFER, David. (2001) “The Conceptualization of Disability. Exploring Theories and Expanding Methodologies: Where We Are and Where We Need to Go”, edited by Sharon N. Barnartt and Barbara Mandell Altman in the series Research in Social Science and Disability, New York: Elsevier Science, volume 2: 29-52.

67 Ver MORRIS, Jenny (1991) “Pride Against Prejudice: Transforming Attitudes to Disability”. The Women's Press Ltd, London, 1991.

68 Que es además un mundo social que, en su diseño, no ha tenido en cuenta la presencia, existencia e igualdad de derechos de las personas con discapacidad.

69 PARSONS, Talcott (1951), “The Social System”. Free Press.

70 GOFFMAN, Erving (1963) “Estigma: la identidad deteriorada”, Buenos Aires, Amorrortu, 1970.

71 BARNES, Colin (1997) “A Legacy of Oppression: A History of Disability in Western Culture”. CHAPTER 1 (In ‘Disability Studies: Past Present and Future’ edited by Len Barton and Mike Oliver (1997); Leeds: The Disability Press, pp. 3 – 24).

72 OLIVER, Michael (1996) "A Sociology of Disability or a Disablist Sociology" In: Len Barton (ed) Disability and Society: Emerging. Issues and Insights. London, Harlow: Longman.

73 STONE, Deborah A. (1984), The Disabled State Macmillan, London.

74 WOLFENSBERGER, Wolf (1989), `Human Service Policies: The Rhetoric versus the Reality' in BARTON, L. (ed.) Disability and Dependence Lewes, Falmer, pp. 23-42.

75 ALBRECHT, Gary L. (1992), The Disability Business London, Sage.

76 TAYLOR, Charles, (1992) “La política del reconocimiento”, en: “El multiculturalismo y la política del reconocimiento” / comentarios de Amy Gutmann... [et al.]. México, D. F., Fondo de Cultura Económica, 1993.

77 TURNER, Ralph H. (1969) “The theme of contemporary social movements”, British Journal of Sociology, December,1969, XX, 390-405

78 "A significant social movement becomes possible when there is a revision in the manner in which a substantial group of people, looking at some misfortune, see it no longer as a misfortune warranting charitable consideration but as an injustice which is intolerable in society." TURNER, Ralph H. (1969) Op.cit., p 321

79 PARSONS, Talcott (1951), “The Social System”. Free Press.

80 Safilios-Rothschild, Constantina (1970). The Sociology and Social Psychology of Disability and Rehabilitation. New York: Random House.

81 OLIVER, Michael (1996) "A Sociology of Disability or a Disablist Sociology" In: Len Barton (ed) Disability and Society: Emerging. Issues and Insights. London, Harlow: Longman.

82 GOFFMAN, Erving (1963) “Estigma: la identidad deteriorada”, Buenos Aires, Amorrortu, 1970. Traducción del inglés: “Stigma: Notes on the Management of Spoiled Identity”, Harmondsworth, Penguin.

83 OLIVER, Michael (1996), Op.cit.

84 GOFFMAN, Erving (1963) “Estigma: la identidad deteriorada”, Buenos Aires, Amorrortu, 1970. Traducción del inglés: “Stigma: Notes on the Management of Spoiled Identity”, Harmondsworth, Penguin. 1963.

85 SCOTT, Robert A. (1969) “The Making of Blind Men”. London, Sage.

86 DE JONG, G. (1979) “The Movement for independent Living: Origins, Ideology and Implications for Disability Research” in BRECHIN. A, and LIDDIARD, P (1983) “Handicap in a Social World”, Milton Keynes, Hodder and Stough in Association with the Open University Press, pp. 239-248.

87 STONE, Deborah. The Disabled State. Philadelphia: Temple University Press, 1984.

88 WOLFENSBERGER, W. (1989) “Human Service Policies: The Rhetoric versus the Reality” in BARTON, L. (ed.) “Disability and Dependence”. Lewes, Falmer, pp. 23-42.

89 ALBRECHT, Gary L. (1992) “The Disability Business: Rehabilitation in America”. Newbury Park, California: Sage Publications, 1992

90 WOLFENSBERGER, W (1994) `The Growing Threat to the Lives of Handicapped People in the Context of Modernistic Values' in Disability and Society Vol. 9, No. 3, pp. 395-413.

91 Altman, Barbara M. 2001. Disability Definitions, Models, Classification Schemes, and Applications. In Gary L. Albrecht, Katherine D. Seelman, and Michael Bury, Handbook of Disability Studies. Thousand Oaks, CA: Sage Publications. Pp. 97-122.

92 Ver al respecto DE JONG, G. (1979) “Independent living: from social movement to analytic paradigm”. Arch Phys Med Rehabil 60: 435-446, 1979.

93 Las políticas públicas expresan el concepto de discapacidad que se tiene, son un reflejo de ello.

94 Hahn, Harlan. 1985. "Toward a Politics of Disability: Definitions, Disciplines, and Policies." Social Science Journal 22:4. Pp. 87-105.

95 Pfeiffer, David and M. Giampietro. 1977. Government Policy toward Handicapped Individuals. Policy Studies Journal 6 93-101.

96 Zola, Irving Kenneth. 1982. Missing Pieces: A Chronicle of Living with a Disability. Philadelphia: Temple University Press.

97 Groce, Nora. 1985. Everybody Here Spoke Sign Language: Hereditary Deafness on Martha's Vineyard. Cambridge, MA: Harvard University Press.

98 Scheer, Jessica, and Nora Groce. 1988. Impairment as a Human Constant: Cross-Cultural and Historical Perspectives on Variation. Journal of Social Issues 44:1 23-37.

99 Longmore, Paul K. and Lauri Umansky. 2001. The New Disability History: American Perspectives. New York: New York University Press.

100 Asch, Adrienne, and Michelle Fine. 1988a. "Disability Beyond Stigma: Social Interaction, Discrimination, and Activism." Journal of Social Issues 44:1. Pp. 3-22. / Idem 1988b. "Introduction: Beyond Pedestals." In Michelle Fine and Adrienne Asch (eds.), Women with Disabilities: Essays in Psychology, Culture, and Politics. Philadelphia: Temple University Press. / Asch, Adrienne, and Eric Parens (eds.). 2000. Prenatal Testing and Disability Rights. Washington DC: Georgetown

University Press.



101 PFEIFFER, D. and YOSHIDA, K. (1994) `Teaching Disability Studies in Canada and the USA, in Disability and Society Vol. 10, No. 4, pp. 475-500

102 "Disability as Field of Study?" by Anthony Ramirez, New York Times, December 21, 1997. Internet publication: http://www.uic.edu/orgs/sds/articles.html

103 “Phyllis Rubenfeld, a professor of social work at Hunter College in Manhattan, plans to propose a disability studies department for undergraduates next year, which would be the first of its kind in the nation”. Anthony Ramirez, op.cit.

104 TAYLOR, Steven and SHOULTZ, Bonnie and WALKER, Pamela (Edited & Compiled) (2003) “Disability Studies: Information and Resources”. Center on Human Policy, School of Education, Syracuse University. November 2003.

105 Ver: “Introduction. The Birth of Disability Studies”, in: OLIVER, M & BARTON, L (Eds) (1997) “Disability Studies: Past Present and Future”; Leeds: The Disability Press.

106 “In particular (sociology) it has ignored the implications of significant advances made in the last 15 years in the study of sexual and racial inequality, and reproduces in the study of disability parallel deficiencies to those found in what is now seen by many as racist and sexist sociology”. ABBERLEY, Paul (1987) “The Concept of Oppression and the Development of a Social Theory of Disability”, in “Disability, Handicap and Society”, 2, 1, pp. 5– 21.

107 HUNT, Paul. (ed.) “Stigma: The Experience of Disability”, London (UK), Geoffrey Chapman, 1966

108 UPIAS (1976). “Fundamental Principles of Disability”, (London: Union of the Physically Impaired Against Segregation - UPIAS).

109 “In our view, it is society which disables physically impaired people. Disability is something imposed on top of our impairments by the way we are unnecessarily isolated and excluded from full participation in society. Disabled people are therefore an oppressed group in society". To understand this it is necessary to grasp the distinction between the physical impairment and the social situation, called 'disability', of people with such impairment. Thus we define impairment as lacking part of or all of a limb, or having a defective limb, organ or mechanism of the body; and disability as the disadvantage or restriction of activity caused by a contemporary social organisation which takes no or little account of people who have physical impairments and thus excludes them from participation in the mainstream of social activities. Physical disability is therefore a particular form of social oppression”. UPIAS (1976) op. cit.

110 Ver al respecto, SHAKESPEARE, Tom & WATSON, Nicholas (2002) “The Social Model of Disability: An outdated ideology?”, in: Journal ‘Research in Social Science and Disability’ Volume 2, pp. 9-28.

111 OLIVER, Michael (1983) “Social Work with Disabled People”, London, Basingstoke: The Macmillan Press Ltd.

112 ABBERLEY, Paul (1987) “The Concept of Oppression and the Development of a Social Theory of Disability”, in “Disability, Handicap and Society”, 2, 1, pp. 5– 21.

113 La palabra “discapacidismo” es un neologismo formado en base a una traducción literal del término inglés “disablism”, que tampoco está registrado en los diccionarios ingleses.

114 “Society must recognise that the disablism (the discriminatory, oppressive and abusive behaviour arising from the belief that disabled people are inferior or less than human) experienced by people with impairments is as unacceptable as racism, sexism and homophobia”. DAA - Disability Awareness in Action (2004) “Definitions of Disability”, Disability Tribune, April/May 2004, Briefing paper.

115 OLIVER, Michael (1990) “The Politics of Disablement”, London, Basingstoke: The Macmillan Press Ltd.

116 BARNES, Colin (1991) “Disabled People in Britain and Discrimination: A Case for Anti discrimination Legislation”. Hurst and Co in Association with the British Council of Organisations of Disabled People, London.

117 MORRIS, Jenny (1991) “Pride Against Prejudice: Transforming Attitudes to Disability”. The Women's Press Ltd, London, 1991.

118 DHS (1992) “Special Issue: Researching Disability”, Disability Handicap and Society, Vol. 7, (2).

119 HEVEY, David (1992). The Creatures Time Forgot - Photography and Disability Imagery. London, New York: Routledge.

120 SHAKESPEARE, Tom (1994) “Cultural Representations of Disabled People: Dustbins for Disavowal” in “Disability and Society” No. 9, Vol. 3. pp. 283-301. SHAKESPEARE, Tom (1994) “Conceptualising Disability: impairment in sociological perspective”. Tesis Doctoral. University of Cambridge.

121 SHAKESPEARE, Tom & WATSON, Nicholas (2002) “The Social Model of Disability: An outdated ideology?”, in: Journal ‘Research in Social Science and Disability’ Volume 2, pp. 9-28 (2002)

122 ABBERLEY, Paul (1996) “Work, Utopia and Impairment”. In: Len Barton (ed) Disability and Society: Emerging. Issues and Insights. London, Harlow: Longman.

123 ABBERLEY, Paul (1999) “The Significance of Work for the Citizenship of. Disabled People”. Paper presented at University College Dublin, 15. April 1999.

124 Nos referimos por ejemplo a la Nordic Network on Disability Research - NNDR

125 PFEIFFER, David (2002) "The Philosophical Foundations of Disability Studies", in: Disability Studies Quarterly, Spring 2002, Volume 22, No. 2, pages 3-23.

126 BARNES, Colin (2001), “Emancipatory Disability Research: Project or process?”. Public Lecture at City Chambers, Glasgow, on 24 October 2001.

127 Miller, EJ and Gwynne, GV (1972) “A Life Apart”. Tavistock Publications, London, 1972

128 HUNT, Paul (1981). “Settling Accounts With The Parasite People: A Critique of “A Live apart” By E.J. Miller and G.V. Gwynne”, in: Disability Challenge 1 (London: UPIAS), pp. 37-50.

129 OLIVER, M. (1997) “Emancipatory Research: Realistic goal or impossible dream?” CHAPTER 2 (in ‘Doing Disability Research’ edited by Colin Barnes and Geof Mercer. Leeds, The Disability Press, pp. 15-31).

130 PARSONS, T. 1951: The Social System London: Routledge and Kagan Paul.

131 DAVIS, F. 1963: Passage Through Crisis: Polio Victims and Their Families, Indianapolis: Bobbs Merrill.

132 GOFFMAN, Erving (1963) “Estigma: la identidad deteriorada”, Buenos Aires, Amorrortu, 1970. Traducción del inglés: “Stigma: Notes on the Management of Spoiled Identity”, Harmondsworth, Penguin. 1963.

133 Miller, E. J. and Gwynne, G. V. 1971: A Life Apart, London: Tavistock.

134 Vamos a referirnos a este tipo de investigación terminando este acápite.

135 Rioux, M. H. and Bach, M. 1994: Disability is Not Measles, Ontario: York University, Roeher Institute.

136 Stone, E. and Priestley, M. 1996: Parasites, Pawns and Partners: Disability Research and the role of non-disabled researchers. In British Journal of Sociology, 47 (4) 699-716.

137 Barnes, C. and Mercer, G. (eds) 1997: Doing Disability Research, Leeds: The Disability Press.

138 Albrecht, G. L. Seelman, K. Bury. M. eds. 2001: Handbook of Disability Studies, London: Sage.

139 National Lottery's Community Fund

140 BARNES, Colin (2001), “Emancipatory Disability Research: Project or process?”. Public Lecture at City Chambers, Glasgow, on 24 October 2001.

141 STONE, Emma and PRIESTLEY, Mark (1996) “Parasites, pawns and partners: Disability Research and the role of non-disabled researchers”. British Journal of Sociology, 47 (4). pp. 699-716.

142 La Fundación Joseph Rowntree o Joseph Rowntree Foundation - JRF

143 ZARB, Gerry and NADASH, Pamela (1994) “Cashing in on Independence”, Derby: The British Council of Disabled People.

144 BARNES, C. MERCER, G. and MORGAN, H. (2000) “Creating independent Futures, Stage One Report”, Leeds: The Disability Press.

145 OLIVER, Michael (1983) “Social Work with Disabled People”, London, Basingstoke: The Macmillan Press Ltd.

146 Ver al respecto: http://www.kar-dht.org/

147 Ver al respecto el brochure de DFID (2000) “Disability, Poverty and Development”. Department for International Development (DFID), London.

148 OMS (2001), “Clasificación Internacional del Funcionamiento, de la Discapacidad y de la Salud”, Grupo de Clasificación, Evaluación, Encuestas y Terminología, Organización Mundial de la Salud, Ginebra, Suiza, 2001. Fue aprobada con Resolución WHA54.21 del 22 de Mayo del 2001

149 OMS – Organización Mundial de la Salud (1983), “Clasificación Internacional de Deficiencias, Discapacidades y Minusvalías. Manual de clasificación de las consecuencias de la enfermedad”. 282 pp. Madrid. Ministerio de Asuntos Sociales; Instituto Nacional de Servicios Sociales, INSERSO. 1983.

150 BARNES, C. 1992: Qualitative Research: valuable or irrelevant. In Disability, Handiap and Society, 7 (2) 115-124.

151 “'The development of such a paradigm stems from the gradual rejection of the positivist view of social research as the pursuit of absolute knowledge through the scientific method and the gradual disillusionment with the interpretive view of such research as the generation of socially useful knowledge within particular historical and social contexts. The emancipatory paradigm, as the name implies, is about the facilitating of a politics of the possible by confronting social oppression at whatever levels it occurs”. OLIVER, M. (1992) 'Changing the Social Relations of Research Production' Disability, Handicap, & Society, 7 (2): 101-115.

152 BARNES, Colin (1996) “Disability and the Myth of the Independent Researcher”. CHAPTER 14 (In ‘Disability Studies: Past Present and Future’ edited by Len Barton and Mike Oliver (1997); Leeds: The Disability Press, pp. 239 – 243).

153 Ver HUNT, Paul (1981). “Settling Accounts With The Parasite People: A Critique of “A Live apart” By E.J. Miller and G.V. Gwynne”, in: Disability Challenge 1 (London: UPIAS), pp. 37-50.

154 BARNES, Colin (1991) “Disabled People in Britain and Discrimination: A Case for Anti discrimination Legislation”. Hurst and Co in Association with the British Council of Organisations of Disabled People, London.

155 ZARB, Gerry and NADASH, Pamela (1994) “Cashing in on Independence”, Derby: The British Council of Disabled People.

156 MORRIS, Jenny (1991) “Pride Against Prejudice: Transforming Attitudes to Disability”. The Women's Press Ltd, London, 1991.

157 SHAKESPEARE, Tom & WATSON, Nicholas (2002) “The Social Model of Disability: An outdated ideology?”, in: Journal ‘Research in Social Science and Disability’ Volume 2, pp. 9-28 (2002)

158 OLIVER, Michael (1997) “Emancipatory Research: Realistic goal or impossible dream?” CHAPTER 2 (in ‘Doing Disability Research’ edited by Colin Barnes and Geof Mercer. Leeds, The Disability Press, pp. 15-31).

159 HUNT, Paul (1981). “Settling Accounts With The Parasite People: A Critique of “A Live apart” By E.J. Miller and G.V. Gwynne”, in: Disability Challenge 1 (London: UPIAS), pp. 37-50.

160 SUCHOWIERSKA, Monika & WHITE, Glen (2003) “Investigación – acción participativa y discapacidad. Pautas para evaluar el rigor científico y la naturaleza colaboradora”. En: Apuntes de Psicología, 2003, Vol. 21, número 3, pp. 437-457. Colegio Oficial de Psicólogos de Andalucía Occidental y Universidad de Sevilla.

161 Hall, Budd L. (1975) "Participatory Research: An Approach for Change" in Convergence vol viii, no 2, pp 24-31.

162 Hall, Budd (1981) “Participatory Research, popular knowledge, and power: A personal reflection”. Convergence, 14, pp 6-19. Ver pág. 7.

163 Minkler, M. (2000). Using Participatory action research to build healthy communities. Public Health Reports, 115, 191-197.

164 Los usuarios son los miembros de la comunidad, los sujetos investigados.

165 ZARB, Gerry (1992) “On the Road to Damascus: first steps towards changing the relations of disability research production”. Disability, Handicap and Society, Vol. 7 (2), pp 125-38, 1992

166 “… the distinction between participatory and emancipatory research is a false one in that the latter will only be achieved when the material as well as the social relations of research production are overthrown: in other words when disablist late-capitalism has been replaced by a different kind of society. Until then, participatory research is all we have got, unless we want to return to positivist or interpretive approaches”. Respecto a las líneas que siguen véase: OLIVER, Michael (1996) "A Sociology of Disability or a Disablist Sociology?" In: Len Barton (ed) Disability and Society: Emerging. Issues and Insights. London, Harlow: Longman; y también: OLIVER, Michael (1997) “Emancipatory Research: Realistic goal or impossible dream?” CHAPTER 2 (in ‘Doing Disability Research’ edited by Colin Barnes and Geof Mercer. Leeds, The Disability Press, pp. 15-31)..

167 OLIVER, Michael (1997) “Emancipatory Research: Realistic goal or impossible dream?”

168 “… the gap between the way they view themselves and the way others insist on seeing them creates barriers to their full inclusion on the American life”, p. iii, SHAPIRO, Joseph P. (1993) “No pity. People with Disabilities Forging a New Civil Rights Movement”. Times Books - A Division of Random House, New York, 1993.

169 Estos cambios podrán darse tanto a nivel individual e institucional, así como cubrir aspectos económicos, políticos, sociales y actitudinales

170 HUNT, Paul (1966) “A Critical Condition” in HUNT, Paul (ed.) (1966) “Stigma: The Experience of Disability”, London, Geoffrey Chapman, pp. 145-164.
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